Derbyshire youngster who regained ability to walk now has sights set on a park run

Alice Lee, 20, from Alfreton, lives with a CASK Gene Mutation, which has resulted in complex disabilities. As a result, she needs help with all everyday tasks and is fed through a gastrostomy.

Due to her condition, Alice gradually lost the ability to walk on her own, despite initially being able to at an early age.

However, following a recommendation, Alice can now walk independently once more using a pacer gait trainer distributed by Sheffield-based postural support specialist, Jiraffe.

Thanks to the pacer, Alice is now able to do what she loves best – getting outdoors and taking part in running events.

She has now set her sights on completing a 5km run once mass participation events have re-started after the Covid-19 pandemic.

Alice’s mum Joanne said: “Alice absolutely loves getting outside in her pacer.

"Not only does it have all the benefits of providing physio, but it also gives her the freedom and ability to be independently mobile outside whilst maintaining her posture and keeping her safe.

“We love that during lockdown two shielding, she can still get out with her pacer even if it's just round our little estate.

“Alice takes part in lots of events and races with me both running and pushing her in her running wheelchair. When our physio suggested the pacer, it was perfect for Alice.

“Alice is very much part of our running group Clumber Runners, as I always run with her, and the group is very excited to see Alice walking.

“Her first event using the pacer should have been the Superhero Triathlon, which was sadly cancelled due to Covid-19.

"But we have everything crossed for next year – hopefully we can build up her distance so she can take part in her first park run independently once it restarts again.”

Richard Harvey, national clinical training manager at Jiraffe, said: “We’re thrilled that the pacer has given Alice the opportunity to walk independently outdoors.”​​​​​​​