Harvey Marshall has spent most of his short life in hospital, being treated for a number of complex medical conditions.
But despite all the operations and other medical tests he has had to go through, the six-year-old remains a happy, cheeky little boy, who loves Lego and counts Ice Age and Toy Story amongst his favourite films.
Harvey’s conditions are so complex, doctors are unable to give him a diagnosis but as soon as he is well enough, he will be able to return to his home in Furness Vale with his mum Lian and two sisters.
However, a large amount of specialist equipment and accessories are needed before he can return home, and his friends and family are currently fundraising to help to pay for everything.
Mum Lian, 27, said: “Some of the things we needed we have managed to get from Harvey’s nurses but the main thing is we just want to make things nice for him when he is at home. He is going to be hooked up to a pump pretty much all the time so he is going to be spending most of his time at home so we really want to make it nice.
“I’d really like to get a sensory garden for him and am planning on looking into it when I can.
“He even needs specialist clothing and that is really expensive.
“There is no treatment, it is just a case of managing things.
“He has intestinal failure which was discovered last year and that can’t be reversed.
“He has been through a lot, especially in the past year but he is happy, cheeky and funny. He doesn’t let anything bother him.”
Doctors are looking into the possibility of Harvey having a small bowel and liver transplant at some point in the future, but they are unable to be sure of the outcome of such an operation, because of Harvey’s medical background.
Locals have rallied round to help the fundraising drive and Harvey’s auntie Vikki Marshall is also preparing to take part in a sky-dive with eight other people in June to raise money for the hospital.
The Swizzels Matlow factory in New Mills, where Lian used to work, and his grandparents Chris and Maxine Marshall and auntie Vikki Marshall still work, held a two-day table top sale recently to help with the fundraising.
Sarah-Louise Heslop, marketing manager at Swizzels Matlow, said: “We want to help Harvey’s family in any way we can.
“He’s such a brave little boy, his condition is so complicated and it baffles doctors.
“His family would like to hear from anyone else suffering from similar medical problems, in the hope that someone out there can help him.”
Thanking those who have helped with the fundraising, Lian said: “I’m still overwhelmed by it all because I’ve always just provided anything he needs so I’m still trying to get my head around people wanting to help me.”
Lian, who has been learning how to care for Harvey in preparation for his return home, says she is grateful to all the staff at Sheffield Children’s Hospital for their help and support over the years.
“They’ve been great,” she said. “They’ve offered all the care they can for him. All the staff are lovely. They’re more like friends than anything now as he’s been coming here since he was two-years-old.
“We don’t know what the future holds really so it is just a matter of taking it as it comes.”
To donate to Harvey and read more about his journey, go to his blog at harveymarshallsjourney.blogspot.co.uk.
You can also find out more on Facebook at www.facebook.com/harveysjourney.
To sponsor Vikki for the sky-dive, see www.justgiving.com/Vikki-Marshall.