“You never expect it. You just can’t believe your child has a life-threatening condition,” said Nick Bingham whose five-year-old daughter needs an urgent heart transplant.
Freya was rushed to a specialist heart unit at Newcastle Hospital after being diagnosed with a rare condition.
Mum Clare, 38, is at her daughter’s bedside while dad Nick, 39, remains at home in Newbold, caring for the couple’s three-year-old daughter Anya and working full time.
Freya’s condition has deteriorated in the last month and she will not be able to leave hospital until she has a new heart and recovers from her operation.
With the school holidays approaching Nick, of Highbury Road, is facing a child care crisis as Anya’s nursery closes and he can not afford child care for the six-week break.
The dad-of-two who works 40 hours a week for a motoring firm in Chesterfield, said: “It’s been a very stressful time and I’m struggling to know what to do for the best. I’ve approached different charities and the council for financial help but so far haven’t been able to get any.”
He said childcare for Anya will cost around £40 a day but with mortgage payments and maintaining the family home his finances will not cover this.
He added: “You just never expect or prepare for this.”
Freya is hooked up to a heart machine, has become very weak and lost some of her hair. Nick visits his daughter every weekend.
He said: “I find it very hard to go to the hospital as I don’t want to come away. She is a daddy’s girl and I just want to pick her up and bring her home.”
FREYA was diagnosed with cardiomyopathy and has been in hospital since May. Nick said: “She wants to be at home, to go to the park and see Thomas the cat. She wants to do what five year-olds do. I take her photos of the garden and a plant she’s been growing.”
He added: “Clare’s been a star, she is so strong. She never has a day off but Freya never gets a break either.” Doctors say Freya could be in hospital for several months. Nick added: “I just want my family back. We hope to have Freya home for Christmas.”
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