Inspirational mum left in wheelchair after rare condition

Family raising money for Ehler-Danlos Support UK, pictured from left are James Morris, Hannah Morris, children Ayla and Lewis Morris and Sandra Crawley
Family raising money for Ehler-Danlos Support UK, pictured from left are James Morris, Hannah Morris, children Ayla and Lewis Morris and Sandra Crawley

An inspirational mum-of-two who can have multiple dislocations in a day is trying to raise awareness of her rare inherited condition - by wearing a zebra onesie for a month.

Hannah Morris, of Queen Victoria Road, New Tupton, was diagnosed with Ehlers-Danlos syndrome (EDS) four years ago after dislocating her shoulder more than 40 times just from picking up pieces of paper at work.

Due to chronic pain the 27-year-old has been forced to use a wheelchair since February in order to take her children Lewis, three, and ninth-month-old Ayla to the playground. She feels there is a lack of understanding about the rare condition that affects connective tissue.

“I was first diagnosed when I was 23 but the problems started when I was 18,” Hannah said.

“I was just so grateful to know I wasn’t imagining things. My own GP had not heard of it.

“For my whole life my left shoulder would dislocate for no reason.

“As I got older I found out I could not do what other kids were doing. They would all run around and I could not run as far as them.”

It was while carrying out office-based work at 18 that Hannah, who has been married to husband James for four years, dislocated her shoulder 40 times in one day.

Hannah went to A&E and also had physiotherapy but it was five years until she was diagnosed with EDS-hypermobile, which can cause a person to have loose joints, joint pain, extreme tiredness and digestive problems among others.

“My family have been brilliant and they have had to adapt to get used to it,” Hannah said.

“It is a bit more of struggle taking my children to the playground in my wheelchair but I don’t want them to miss out.”

“On certain days I feel more pain and I can’t even chop vegetables. But I don’t want to let it beat me.”

Hannah’s mum, Sandra Crawley, 65, who also has two other daughters, Alexandra, 32 and Naomi, 34, said: “Just recently she dislocated her knee reaching for a cup of tea.

“I share the care side with Hannah’s husband James when he is on shift.

“It is an invisible condition that Hannah was born with. You do not develop it.”

As part of EDS awareness month in May, Hannah will be wearing a zebra onesie every day, as EDS is known as a ‘medical zebra’.

Make a donation at: www.justgiving.com/Hannah-Morris14